Epidermolysis Bullosa Congenita in Mexico. 30 years of Experience.
演讲者

Julio Cesar Salas-Alanis
Mexico
Julio Cesar Salas-Alanis POSITION TITLE: Dermatology Professor, Instituto Dermatologico de Jalisco, Mexico. EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, include postdoctoral training and residency training if applicable. Add/delete rows as necessary.) INSTITUTION AND LOCATIONDEGREE Universidad Autonoma de Nuevo Leon, Mexico Universidad de Barcelona Hospital Clinic I ProvincialDoc med12-2015 12-1993Genodermatosis Instituto Dermatologico de Jalisco, Mexico Instituto Dermatologico de Jalisco,Mexico Universidad Autonoma de Nuevo Leon, Mexico Dermatology M.D.12-1992 12-1991 12-1987Dermatopathology Dermatology Medical Doctor FIELD OF STUDY Universidad Autonoma de Nuevo Leon, Mexico Universidad de Barcelona Hospital Clinic I ProvincialDoc med12-2015 12-1993Genodermatosis Instituto Dermatologico de Jalisco, Mexico Instituto Dermatologico de Jalisco,Mexico Universidad Autonoma de Nuevo Leon, Mexico Dermatology M.D.12-1992 12-1991 12-1987Dermatopathology Dermatology Medical Doctor Personal Statement Dermatologist from Mexico, researcher since 1995, member of Local and National Dermatology Societies. Member of the American Academy of Dermatology, and International Dermatology Society. Founder of Dystrophic Epidermolysis Bullosa Research Association Mexico (1995) DEBRA MEXICO AC. He is one of the Genodermatosis researcher leaders in Mexico and Latin-American, after one year spent at the Universidad Autonoma de Barcelona (Hospital Clinic I Provincial) Spain, learning Dermatopathology he moved to learn Immunofluorescence techniques for the Diagnosis of Immunoblistering and Autoimmune disorders at St. Johns Institute of London in the Kings College London. In Mexico,1994 he founded The Dystrophic Epidermolysis Bullous Research Association Mexico (DebRA Mexico), a nonprofit association to give support to the patients with a rare genetic disease; Epidermolysis Bullosa. More than 300 hundred papers have published, 102 on pubmed; Science Translational Medicine, Oncotarget, Nature Communications, American Journal of Dermatology, Journal of Investigative in Dermatology, American Human Genetics, PLOS, PNAS, and some others. Local and National awards on the Research field as the National Prize for his volunteer job as Founder and President of DebRA MEXICO, (Dystrophic Epidermolysis Bullous Research Association) Community leadership skinpactGalderma award 2016 for the Association DEBRA MEXICO. International Collaborations with different Universities in USA: Columbia, Angela Christiano (Genotrichosis, Epidermolysis Bullosa, Trichothiodystrophy), Thomas Jefferson, Jouni Uitto, Andy South, (Epidermolysis Bullosa, microbiota, squamous cell carcinoma,), Stanford, Peter Marinkovici (Epidermolysis Bullosa), Yale, Keith Choate (Hypohidrotic Ectodermal Dysplasias), London, John McGrath (Genodermatosis), Sydney, Dedee Murrel and some others. Dr. Salas-Alanis is well known dermatologist in Mexico, Latino America and some countries around the world for his enthusiasm, energy and easy way to see the social problems. His empathy to others has been a reason for his success on life. Positions and Honors Professor and Researcher Univirsidad Autonoma de Mexico and Instituto Dermatologico de Jalisco, Mexico. Visiting Professor at Dermatology Dept of Yale University, New Haven Connecticut 2013-2014 Professor & Researcher School of Medicine Universidad de Monterrey 2013-2018 Professor & Researcher Dermatology Dept, Hospital Universitario, Monterrey Nuevo Leon 2009-2013 Professor & Researcher School of Medicine, Instituto de Estudios Superiores del Tecnolgico de Monterrey 2004-2013 Director of Dermatology Services, Servicios Mdicos de la Universidad Autnoma de Nuevo Leon 1994-2007. Dermatology Adjunct Professor School of Medicine, Universidad de Monterrey 2002-2004 Professor of Histology Medicine School Universidad Autonoma de Nuevo Leon 1993-1997. Contributions to Science As a founder of Dystrophic epidermolysis Bullosa Research Association in Mexico (DebRA) his main field of work has been EB. His work on EB, started in 1994 with the first publications reporting this disease in Latin America, his collaborations have demonstrated how some patients present a phenotype that is opposite to the genotype of the mutation. He has studied a group of EB patients that have survived for over 60 years with an aggressive disease variant without suffering from squamous cell carcinoma. In collaboration with Dr. Angela Christiano, they worked on a study utilizing CRISPR Cas-9 techniques to produce 3D models of skin with the idea of grafting the wounds of EB patients. In the year 2012, he published on the JAAD joural, with international collaboration the second scoring system in the history of this disease: the Epidermolysis Bullosa Oropharyngeal Severity (EBOS) score: a multicenter development and reliability assessment. This score attempts to evaluate the severity of EB in the oropharyngeal cavity, which is many times is forgotten upon physical examination of these patients. For the last 20 years, his collaboration with Andrew South in molecular research for Squamous Cell Carcinoma that affects these patients has allowed for a deeper understanding regarding the aggressiveness of this often-fatal cancer. As a part of DebRA International and his interest in collaborating to improve patients quality of life he has published in 2016 at the BJD, The Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa: best clinical practice guidelines. In the year 2021, he published in J Rare Dis; Physiotherapy for epidermolysis bullosa: clinical practice guidelines. He has contributed in a multitude of studies for mutations such as Hypohidrotic EctodermalDysplasia, GAPO Syndrome, Olmsted, palmoplantar keratoderma punctata, Pseudoxanthoma elasticum and other genetic diseases. His last contribution is proposing haematohidrosis and haematolacria as a possible genetic disease by realizing the first exome sequencing study, finding genes related to the extracellular matrix as a possible cause. He was also the first to use the term trichorrage by demostrating how the erythrocytes exit through the pillous folilicle.. Additional Information: Research Support and/or Scholastic Performance As a research Support professor he has been collaborating with several protocols of different groups around the world. Research Professor of Dermatology, Instituto Dermatologico de Jalisco and Universidad Autonoma de Mexico 2017-2021. Research Professor of Dermatology. Escuela de Medicina, Universidad de Monterrey. N.L. Mxico, Agosto 2012-2017. Visiting Dermatologist, Universidad de Yale, New Haven Connecticut USA, 2013-2014. Research Professor of Dermatology, Dermatologa del Hospital Universitario de la Universidad Autnoma de Nuevo Leon, 2010-2013. Research Professor of Dermatology Escuela de Medicina del Instituto Teconolgico de Estudios Superiores Monterrey N.L. 2004-2013. Chief of Dermatology Services Servicos Mdicos de la Universidad Autnoma de Nuevo Lon, 1994-2007. Dermatology Professor Universidad de Monterrey, 2002-2006. Histology Professor Facultad de Medicina de la UANL, 993-1997.
源事件

WORLD SKIN HEALTH DAY – GUINEA 2023
A. Background:
The purpose of the World Skin Health Day (WSHD) is to recognize and promote skin health in the world. In stemmed in 2012 from the International League of Dermatological Societies (ILDS) and the International Society of Dermatology (ISD) and there have been several official WSHD activities in countries worldwide, totalling a reach of more than 11 million people.Around the world, members of the ILDS and ISD undertake activities to recognize and promote skin health; including Screening clinics, care activities, public seminars, marches and social media campaigns, the campaign has a global reach. Taking part in WSHD helps raise awareness of the wider impact of skin diseases, as well as supporting people in need of treatment in their communities local.
B. Why skin health?
Skin diseases are one of the most common human diseases. The 11th revision of the WHO International Classification of Diseases (ICD-11) includes more than 2,000 skin diseases or related to the skin. According to the American Academy of Dermatology, there are in fact more than 3,000 diseases of skin and the dermatologist is in charge of the management of these pathologies. It permeates all cultures, occurs at all ages and affects between 30% and 70% of individuals, with even higher rates in at-risk subpopulations (Hay R, Bendeck SE, Chen S, et al 2014). However, skin conditions and diseases are often ignored or given low priority by health authorities because they do not, on the whole, kill people (WHO 2005). Skin diseases also have a serious impact on people’s quality of life, leading to loss of productivity at work and school, and discrimination due to disfigurement. In many regions of the world, people with skin conditions do not have access to support and adequate treatment. In view of this, the ILDS and ISD initiated the WSHD initiatie to help raise awareness and better understand skin diseases. During these days, the communities of areas underserved in management of dermatoses are provided
with adequate skin care free of charge.
C. About -The International League of Dermatological Societies (ILDS):
The International League of Dermatological Societies (ILDS) is a non-governmental organization that promotes the improvement of skin care, education and science throughout the world. It brings together more than 190 member companies from more than 80 countries. The ILDS has access to the experience of over 200 000 dermatologists. We celebrate and share the wide range of approaches to health and disease of the skin that exist in the world. -The International Society of Dermatology (ISD) was founded in 1959. The organization was initially the “Society Association of Tropical Dermatology”. The Society was then particularly interested in the dermatology world and tropical skin diseases, but since covers also all aspects of dermatology such as basic sciences, venereology and public health and to teaching dermatology in developing countries.-Dermatological Clinic: The mission of the Dermatological Clinic is to provide adequate dermatological care that contribute to improving the quality of life of patients. It allows quick consultations and affordable as well as accurate diagnoses and treatment plans via a web and mobile platform secured with an autonomous and affordable payment option. Various barriers limiting access to Dermatologist consultations are then eliminated.
E. What will happen for this 4th Edition:
1st Phase: From January 23 to 26, 2023: An international congress in Dermatology will be held in Guinea with the participation of nearly 100 speakers who many of whom are world leaders in dermatological sciences. A hybrid mode is selected for this congress and it will be held at La Source University in Conakry. For this congress, the themes are distributed as follows:
23 January 2023
- Theme 1 : Acne and Rosacea (Diagnosis and Treatment)
- Theme 2: Psoriasis (Diagnosis and Treatment)
- Theme 3 : Cosmetic Dermatology (Aging, Botox, Fillers, Lasers
- Theme 4 : Pigmentation (Diagnosis and Treatment)
- Theme 5: Dermatoepidemiology
24 Janvier 2023
- Theme 6 : Teledermatology and AI in Skin Diseases
- Theme 7 : Sexually transmitted diseases et genital dermatology
- Theme 8 : Medical Dermatology and Dermatopathology
- Theme 9 : Tropical Dermatology
- Theme 10 : Covid-19
25 Janvier 2023
- Theme 11 : Rising Stars
- Theme 12 : Atopic Dermatitis and allergology
- Theme 13 : Dermatosurgery
- $Theme 14 Cutaneous Neoplasms
- Theme 15 : Hair Disorders
26 Janvier 2023
- Theme 16 : Pediatric Dermatology
- Theme 17 : Psychodermatology
- Theme 18 : Dermoscopy
- Theme 19 Vesicullobullous disorders and others – Maladies vésiculobulleuses + Autres
- Theme 20: Nail Disorders
The scientific committee
- Prof. Brigitte DRENO MD PhD (head of the Scientific committee / Responsable duScientific Committee)
- Prof. Jean BOLOGNIA MD
- Prof. Dedee MURRELL MD PhD
- Prof. Hassan GALADARI MD
- Prof. Koushik LAHIRI MBBS, DVD(CAL), IFAAD, FIAD, FFAADV, FRCP(Glasgow), FRCP(Edin),FRCP (London)
- Prof. H. Peter SOYER MD, FACD FAHMS
- Prof. Tu Anh DUONG MD, PhD
- Prof. Somesh GUPTA MD
- Dr. Christopher HSU MD
- Prof. Nejib DOSS MD
- Prof. Aleksandra LESIAK MD PhD
- Prof. Monika FIDA MD
- Prof. Franco RONGIOLETTI MD
- Prof. Samira ZOBIRI MD
- Prof. Aldo MORRONE
- Prof. Amor KHACHEMOUNE MD, PhD
- Prof. Enas ATTIA MD
- Prof. Asmahane SOUISSI MD
- Prof. Mohsin AL-DHALIMI MD
- Prof. Roxanna SADOUGHIFAR MD
- Prof. Hamida TURKI MD
- Prof. Dominique TENNSTEDT MD
- Prof. Mohammad JAFFERANY MD, PhD
- Prof. Aimilios LALLAS MD, MSc, PhD
- Prof. Esther FREEMAN MD PhD
- Prof. Joanna NARBUTT MD
The organizing committee
- Dr Ibrahima TRAORE MD, PgDip, MSc (head of the organizing committee / Head of the Organizing Committee)
- Dr. Albertina Onsea MD PhD
- Dr Aboubacar Salematou SYLLA MD, MSc
- Dr. Mohamed Medo SYLLA MD, MSc
- Dr. Aly Badara NABE MD, MSc
- Mr. Balla Moussa DIOUBATE MSc
- Mr. Jaume BOLTA
- Dr. Ibrahima SACKO MD
- Dr. Siaka MARA MD
- Mr. Djenabou KONATE
- Mr. Ibrahima Sory CAMARA*
“Through an agreement between the Union Européenne des Médecins Spécialistes and the American Medical Association, physicians may convert EACCME® credits to an equivalent number of AMA PRA Category 1 CreditsTM. Information on the process to convert EACCME® credit to AMA credit can be found atwww.ama-assn.org/education/earn-credit-participation-international-activities“Live educational activities, occurring outside of Canada, recognised by the UEMS-EACCME® for ECMEC®s are deemed to be Accredited Group Learning Activities (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.”
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